THE SHADDOX BOYS

Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!





Sunday, March 21, 2010

Don't Judge Me

Someone posted about the Medicaid buy in program on a local message board for our town. I posted some information on it. Someone suggested I try CHIPS for my son(a buy in insurance program) but he doesn't qualify because I have insurance on him. Plus, it isn't the best of insurance as many doctors don't take it. I posted that I really just needed assistance with the meds since Elijah takes so many medications and they can get expensive. Plust the fact, I am only looking for help with copays since we have insurance and medicaid could act as a secondary insurance.

Well, I guess someone took offense, because they posted "so you expect the taxpayers to pay for your medicaitons?" First of all, it is only for Elijah's meds, not mine or Jacob's meds. Secondly, people who have never dealt with a disabled child, especially one with multiples sometimes hidden disablities, should not judge others on their need for asssistance. Oh it just burned me this morning.

I know there are children with much more severe disablities, but his nuerological disability(tourette syndrome, OCD and ADHD) should not be taken lightly either. It interferes with how he functions in the world and how he interacts with people. If he doesn't take his meds, he cannot function in society. I would like nothing better than for him NOT to need these medicaitons, but he cannot function without them. The amount of money I spend on meds is outrageous. I never even applied for medicaid or SSI until my husband left.Plus he is asthmatic and deaf.

I guess some people just don't get it.

2 comments:

  1. Ugh, hate people like that. You just can't judge someone until you've walked a mile in his/her shoes.

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