I went to a workshop today at the educational service center for our area on Tourette Syndrome. Susan Conners was the presenter and she did an awesome job. I have already emailed her with a question. She was easy to talk to and KNOWS so much about tourettes. She has it herself. She is also a very giving person offering her email and to phone in for IEP meetings if needed.
I feel like I haven't really always been dealing with Elijah's tourettes. I have got to get myself more educated and become even a stronger advocate than I have been. It is an overwhelming thing to deal with. There are no easy answers and I think what I really liked about today was that Susan really understood and was able to answer all the questions asked of her. Nothing seemed to stump her.
Everytime I think I have tourettes figured out, it throws me a curve. The OCD and ADHD don't help at all either.
Taking Elijah to the doctor on Monday. When his tics really get going, he is having about 70 tics every 10 min. They are really hard tics.
I am going to enjoy the rest of my weekend! Staying home out of the cold! I have a few errands to run, but they won't take long and I'll get home to my warm house!
THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!