Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!

Saturday, July 28, 2012

Nobody Seems To Get It!

I don't think anyone really understands what it is like to have a child with Tourette Syndrome. Unless you have a child with Tourettes or a neurological disorder, you just don't get it. Elijah has to have consistency. I can't waiver from that. I can't compromise and let him have one day where I waiver from the "rules" I have established. Through trial and error and a LOT of rough days, I have learned this. It may seem like a good idea to compromise and give in so things run smooth during that moment, but then I pay for it for several days. I leave to go out of town for three days tomorrow. I can't waiver at this point. I can't compromise, or the person keeping him will have a rough three days. I can't think of what is right in the moment, I have to think of what is right for the long haul. I guess it is OK that people don't get it, but don't think I am too hard on him, because I am not.


  1. Actually, *all* children need consistency if they are to grow into happy, well-adjusted people who have even a trace of self-control. As you can see from all the “adults” who still act like preschoolers and think that they are entitled to their way on all things at all times, many parents have failed one or more of their core tasks of child-rearing. They do not “get it” and they fail their children.


  2. I do agree, all kids need consistency. My son however needs even more than the usual consistency it seems.