THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. Jacob is 21 years old and just moved into an apartment with his girlfriend. He graduated from a technical college with an Associate's degree in Computer Maintenance. He works for a school district as a computer technician. Elijah is almost 18 years old. He is hearing impaired, has Tourette Syndrome, OCD and ADHD. He is a junior in high school. Elijah lives with his mom Mary and her wife, his stepmom. Mary has a bachelor's in deaf education and a masters in special education, and is an educational diagnostician. Life is always changing and this blog has chronicled many of these changes and will continue to do so!
Friday, May 14, 2010
Tourette Syndrome Awareness Month
Tomorrow is the beginning of Tourette Syndrome Awareness Month(May 15th-June 15th). My youngest son, Elijah, who is ten years old was diagnosed two years ago with Tourette Syndrome. I am still educating myself about tourettes and the other disorders that go along with it. Elijah also has ADHD, OCD and anxiety. Right now he is doing pretty well and things are improving at school.
Tonight when we went out to eat he had more tics than usual. He was making his motor sound, arghhhhhh. He does it several times, stops, and then starts up again. We got a few looks, but nothing to really notice. He stopped after a bit. We were with my brother, his wife and their daughter. We just ignored it and kept on eating. I often wonder what to do in those situations. It doesn't really bother me, but I would like to educate those around us about why Elijah is doing what he is doing. He is NOT just making noises and he isn't mad. He is just having his tics.
We came home and it was bath time. Oh wow, he cut loose in the bathtub. I call them his "bathroom tics" or his "bang bang tics" because HE BANGS and BANGS on the tub with his hand. Tonight I thought he might take down a wall. I stepped into the bathroom, flicked the lights(he is deaf and didn't have his cochlear implants on), and signed "calm down, no bang bang" and he yells back "they are tics MOM!". I signed, "yea, but quiet, quiet"...meaning calm them down a little and then signed "you break it" meaning the tub. He got it then and calmed his tics a little. I know he can't control them, but he really might just break my tub. There is a small crack in the bottom of the fiberglass tub. He did contintue to bang, but not with as much vigor.
I just bought a flip camera and considered recording his tics in the bathtub, but then thought I might embarass him. I am going to try to get his tics recorded though to show his future teachers and to show the doctor if needed. I may even share them on here for those who don't quite understand tourettes. I hope I can educate others about Tourette's and the assosicated disorders that go with it.