Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!

Wednesday, May 5, 2010

Merry Go Round

I sometimes feel like I am on Merry Go Round when it comes to Elijah. He has his UPS and DOWNS and I am usually along for the ride, ready to catch him if or when he falls. He is doing very well at home right now, a bit bossy, but compared to his past behaviors he is much improved. His newest thing is to tell me, “NO WAY!” when I tell him it is time for bed, time for dinner, or just time to do something different than what he is doing. I always give him a reminder of “In five minutes you need to _________.” Transitions can be very difficult for him.

Yesterday at school he had a rough day. It wasn’t one of his most horrible days, but not one of his best days. His teacher emailed me that he had bitten someone in PE. He had just walked right up to this kid and bit them on the arm. She asked if it could be a tic. I decided to call her rather than email her. I called and got clarification that it was a gentle bite, if a bite can be gentle. I explained that he has done this to me at home several times when he is close to me. He never bites hard, but he does bite. He has also grabbed my hand and licked it. Are these tics? I told her I just didn’t know for sure.

I am hoping he had a better day today. We got back to the doctor tomorrow. I lowered his new medication after reading the side effects and talking to his doctor yesterday on the phone. I upped one of his previous meds that we had lowered a few weeks ago. I am hoping we can find that right combination so that he can have better days. The tics are not the problem, except for that biting, it is the other behaviors of being defiant and not following the rules.

One day I might not be there to catch him when he falls, but for now I am ready to do whatever is needed to help him on this journey. I just wish I knew HOW to help him. There are just no easy answers.

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