Elijah and I finally made it to a Tourette Syndrome Support group meeting yesterday. We had not been to a regular meeting in almost a year. My weekends had been spent mystery shopping and taking Jacob to soccer games to referee(and he is refereeing again this year), but I am setting aside ONE Saturday a month to go to this meeting. Elijah and I both need this time! We did go to the back to school meeting in August but it was bowling and laser tag, not a regular meeting.
Yesterday's meeting went really well. There were several new families that I had not met before and the speaker was from the Tourette's Texas branch, so she is over all of the support groups in Texas. She gave us some great handouts and we all discussed our kids and how they handle things at school.
Elijah played with a group of kids in another room and did fairly well. He got upset once when a ball hit his head and another time the ball knocked his processor off, but overall he did well. The kids he played with either have Tourette's or a sibling with it. Everyone is very tolerant of each other, because they are all the same.
I also found out more about a camp that they have for kids with Tourettes here in Texas. It is Camp du Ballon Rouge. It is a three day/two night camp and I am planning on taking Elijah this year. My honey and I can have a nice weekend together in the area, so we are close by to take him and pick him up. He can have a weekend with other kids and get to be himself. I do worry about him being DEAF at night when his "ears" are off, but the person yesterday assured me that they could handle it!! I know he will be a bit anxious about it, but I think it would be great for him to go! This will be some time next Spring!
I plan on attending the meeting next month! We both really need to go! It recharges my batteries!
THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!