Elijah and I finally made it to a Tourette Syndrome Support group meeting yesterday. We had not been to a regular meeting in almost a year. My weekends had been spent mystery shopping and taking Jacob to soccer games to referee(and he is refereeing again this year), but I am setting aside ONE Saturday a month to go to this meeting. Elijah and I both need this time! We did go to the back to school meeting in August but it was bowling and laser tag, not a regular meeting.
Yesterday's meeting went really well. There were several new families that I had not met before and the speaker was from the Tourette's Texas branch, so she is over all of the support groups in Texas. She gave us some great handouts and we all discussed our kids and how they handle things at school.
Elijah played with a group of kids in another room and did fairly well. He got upset once when a ball hit his head and another time the ball knocked his processor off, but overall he did well. The kids he played with either have Tourette's or a sibling with it. Everyone is very tolerant of each other, because they are all the same.
I also found out more about a camp that they have for kids with Tourettes here in Texas. It is Camp du Ballon Rouge. It is a three day/two night camp and I am planning on taking Elijah this year. My honey and I can have a nice weekend together in the area, so we are close by to take him and pick him up. He can have a weekend with other kids and get to be himself. I do worry about him being DEAF at night when his "ears" are off, but the person yesterday assured me that they could handle it!! I know he will be a bit anxious about it, but I think it would be great for him to go! This will be some time next Spring!
I plan on attending the meeting next month! We both really need to go! It recharges my batteries!
THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. Jacob is 21 years old and just moved into an apartment with his girlfriend. He graduated from a technical college with an Associate's degree in Computer Maintenance. He works for a school district as a computer technician. Elijah is almost 18 years old. He is hearing impaired, has Tourette Syndrome, OCD and ADHD. He is a junior in high school. Elijah lives with his mom Mary and her wife, his stepmom. Mary has a bachelor's in deaf education and a masters in special education, and is an educational diagnostician. Life is always changing and this blog has chronicled many of these changes and will continue to do so!