I watched last nights Parenthood episode tonight on my DVR. The subject of IEP (Individualized Education Plan) meetings was the story line for the family with Max, who has Aspergers. The writers did a decent job of portraying an IEP meeting and how overwhelming it can be for a family. I really wanted to jump in there and advocate for the two families involved. Max's mom went to an IEP meeting to assist another mom, and felt that she could have done more to help. Max's mom then finds out that Max is being sent to the library to do independent work because his teacher can't teach when Max is in the room. Max's parents are frustrated and don't know what to do or how to advocate for him. I think this part was something the writer's got correct.
Parents do have to educate themselves on the law and what the school needs to provide under IDEA (Individual's with Disabilities Education Act). I am a deaf education teacher I was used to being in an IEP meetings(ARD meeting here in Texas) in that role. As a parent, I find it difficult to know how to handle all of the situations I find myself in with him. I have learned to use the acronym FAPE(Free and Appropriate Education) as well as LRE (Least Restrictive Environment) to my advantage. I have also learned to say things like, "You are making my son fit into a program instead of making the program fit him." This phrase been a good one.
Elijah's next ARD meeting is in April! He is being re-evaluated this year and we will discuss those scores as well as the plan for next year. He has had a good year so far, but has just recently been having some issues. Of course, we just went to the doctor on Monday and NOW he is having problems with touching others. ARGH....I know this is probably a tic, but how to handle it. I am going to email his teacher again and ask for the behavior specialist to come in and see what is going on.
I am glad to see a TV program take on real life issues of families of children with special needs.
THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!