Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!

Tuesday, February 26, 2013

Phoebe in Wonderland

Phoebe in Wonderland is a movie that depicts a family dealing with a child with Tourette Syndrome. The family does not know this is what they are dealing with at first. The daughter acts strangely, makes sounds, spits, has OCD tendencies and overall is just not acting "normal". It was a hard movie for to me to watch, because I had gone through the range of emotions that the mother in the movie goes through. I had thought there was NO way that Elijah had Tourette Syndrome. Even when we suspected it, I didn't grasp the full effect of this condition.

I would recommend this movie to anyone who wants to get a better understanding of Tourette Syndrome and its co morbid disorders. There is a point in the movie when the family is eating dinner. There are the two girls(Phoebe and her younger sister) and the parents. I don't remember exactly how it all starts, but the girls tease their parents about having a baby. They keeping being silly and saying the mom should have another baby. The parents are extremely stressed with everything that has been going on with Phoebe and the father looks at her and says(and I paraphrase) "Do you think your mom can handle another one like you?" Of course, he regrets it as soon as he says it. The daughter is hurt and the mother is upset. Later the parents talk and the father tells his wife that he has apologized to Phoebe, but the mother is still very upset with her husband. She finally says(and paraphrasing again) "You said exactly what I was thinking. You are right, I can't handle another one like her." I cried through this entire part of this movie. It was at a time, when I felt the same way about Elijah. I just didn't know what to do with him or how to best help him.

Elijah is doing very well now and I am thankful for that. We have had some very rough years, and we may have some rough times again, but I am better equipped to handle it. He has good doctors and a great staff at his school. We just take it day by day!

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