So I get a phone call from Elijah's teacher on Thursday that he had, in her words, a "horrific" day. He has been "off" for two weeks in his behavior. Now this is the first I am hearing of it. He has a checklist that comes home daily and there has been nothing on there about him being "off" like this. He has gotten check marks in the good, fair and poor categories, but no notes about anything specific. We then got into a discussion about next school year.
One of my concerns about him being in a behavior class is that it really isn't appropriate for a kid with tourettes. He has a neurological condition that causes some of his issues. Some days he will just be "off" and it isn't really his fault. NOW can he learn to try to control himself...YES he can, but he is only ten(going on eleven by the end of the month). Now I have OCD and I know how hard it is to turn off that voice in my head that tells me to freak out about things, so I can only imagine how hard it is for Elijah who has to deal with tics, OCD and ADHD.
I called the psychiatrist office and got him an appointment for the next day, which was yesterday. We didn't get to see his usual person there, because she is on maternity leave but we did see someone else who was very nice. We discussed things and Elijah did a good job of talking to her. We are adding a new medication to his already long list of meds. It is one that hopefully will help control his impulsivity during the day that seems to be his issue. He is yelling out in class and being off task. He will start with 1 mg and then in a week go to 2mg and then we go back in to discuss how it is going.
I hate him having to be on medications, but I truly believe he is a child who has to have them in order to function. His IEP meeting is in about three weeks. I did send a book to school for his teacher calling, "Teaching the Tiger" that is specifically about kids with Tourettes and other co morbid disorders. I really want them to see that HE will have OFF days and there is no amount of rewards or consequences that will truly control those days when he is REALLY OFF...when the chemical imbalance is just too much. I tell him to wipe away his worries and rub his forehead. That seems to help when I see him spiraling a bit out of control. I need to share that with his teacher. He is so remorseful after having what I call a "fit". He knows he messed up, but when he is IN IT he can't pull back and stop himself. That is a skill he will need to learn and one that hopefully meds can help some with.
THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!