Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!

Thursday, March 17, 2011

It's Not Easy!

It's not easy living with a child with Tourette Syndrome, OCD and ADHD. I group them together because for Elijah they all go hand in hand. Now tics are the most obvious thing about Tourette Syndrome. For the most part, Elijah's tics are not too bad. However the last few days they have been, and we have been home for Spring Break so I never get a break. I know he can't help it, but at some point the noises can drive you insane. He has also been a bit more arguementative and not good about following directions. All of this leads to my patience thinning over time.

Today we went to the pulmanologist. He was just all over the place on the drive there. I had errands to run and those took about 90 minutes after the two hour doctor's appointment. It was for both boys so that is one reason it took so long. Elijah was better during the errands. We then get home and are home for about two hours when he spills something on his shirt. Ok no problem, we will just change his shirt. Well he goes to take off his processors and mentions that ONE of them has a missing battery cage. Now I ask him WHEN did he notice it not working and he of course, doesn't answer. We look all over the house and then I call the doctor's office and they find it in the examining room and will mail it to me. This means from at least NOON to 4:00 he was walking around NOT hearing out of that one ear and NOT telling me that he couldn't hear. ARGHHHHHHH! I totally thinks this goes to immaturity and anxiety of knowing losing it means he gets in trouble, but if he would tell me right away we could find it. I am still amazed they found it at the doctor's office.

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