Elijah and I went to the North Texas Tourette Syndrome Support group meeting today in Dallas. I am hoping to make more meetings this year since Elijah won't be playing soccer. It is a good group and there is always a pretty good turn out. It is nice being able to talk to parents who experience many of the same things that I experience with Elijah. We all have different stories, but they all relate with the tics and such.
We had one speaker today and then the parents just sat around and spoke. I spoke to two other moms and we shared school experiences and each of us had some ideas on how to help each other out. It may sound boring, but it really wasn't. It was nice to be able to share with others who truly GET IT!
Eljiah behaved himself and did EXCELLENT! it was probably the best he has ever behaved while we were at one of these meeting. The kids meet in another room and participate in some kind activity to keep them busy. I think it is good for him to be around other kids who know what it is like to have TS.
We have also gone to support group meetings for parents to deaf children and they were very helpful to me when Elijah was younger. I am now the person there offering more support to those parents who are just learning of their child's hearing loss. At the TS meetings, I am the one more in need of support! I am just in a different place with the TS than I am with the deafness....it's all about support though! Giving and receiving it!
THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. Jacob is 21 years old and just moved into an apartment with his girlfriend. He graduated from a technical college with an Associate's degree in Computer Maintenance. He works for a school district as a computer technician. Elijah is almost 18 years old. He is hearing impaired, has Tourette Syndrome, OCD and ADHD. He is a junior in high school. Elijah lives with his mom Mary and her wife, his stepmom. Mary has a bachelor's in deaf education and a masters in special education, and is an educational diagnostician. Life is always changing and this blog has chronicled many of these changes and will continue to do so!