Elijah and I went to the North Texas Tourette Syndrome Support group meeting today in Dallas. I am hoping to make more meetings this year since Elijah won't be playing soccer. It is a good group and there is always a pretty good turn out. It is nice being able to talk to parents who experience many of the same things that I experience with Elijah. We all have different stories, but they all relate with the tics and such.
We had one speaker today and then the parents just sat around and spoke. I spoke to two other moms and we shared school experiences and each of us had some ideas on how to help each other out. It may sound boring, but it really wasn't. It was nice to be able to share with others who truly GET IT!
Eljiah behaved himself and did EXCELLENT! it was probably the best he has ever behaved while we were at one of these meeting. The kids meet in another room and participate in some kind activity to keep them busy. I think it is good for him to be around other kids who know what it is like to have TS.
We have also gone to support group meetings for parents to deaf children and they were very helpful to me when Elijah was younger. I am now the person there offering more support to those parents who are just learning of their child's hearing loss. At the TS meetings, I am the one more in need of support! I am just in a different place with the TS than I am with the deafness....it's all about support though! Giving and receiving it!
THE SHADDOX BOYS
Jacob and Elijah Shaddox are brothers. They live with their mom, Mary, who is the writer of this blog. Jacob is 19 and is now four inches taller than his mom! He also has ADHD and gorgeous red hair. He is a freshman at a technical college studying computer maintenance. Elijah is 15! He is in 9th grade and he is not in ROTC at his high school. He also had red hair, but it is lighter and not as thick as his brother's hair. He is hearing impaired(auditory neuropathy) and wears two cochlear implants. He also has tourette syndrome, ADHD, OCD and anxiety! Mary just started her 25th year as a teacher of the deaf. She is also in her last semester of graduate school to be a diagnostician! She will graduate in December of 2015!