It's Been a While

I just realized I have not posted in over two months! I guess you can say I have been busy. The summer went by quickly. Elijah had SEVERAL doctor's appointments that kept us busy for the first few weeks of the summer. I kept my niece and nephew two days a week, plus we had to deal with the house. We finally got the ceilings repaired and new wood floors at the end of July. We had to move out of the house for a week. Insurance paid for the hotel and our meals, but boy was it still a hassle. There was a lot to pack up and put away so the contractors could do their work.

We arrived home on a Tuesday morning to clean up before moving our things back from the hotel, only to find the AC was broken. The repairman came that afternoon and we ended up having to buy a whole new unit which was installed the next day. He was able to put in Freon so that we could survive the night. It gets hot here in TEXAS in JULY! The house looks great. We have a few minor things to still have taken care of in the house. We also need new insulation, the fence to be restained, the house to be painted and the gutters to be put up. The contractors are busy working on other people's home right now.

I went back to work on Aug. 8th and school started on Aug. 22nd. Jacob is still working at a larger retail electronics' store in the computer components section. He hopes to gain experience and is currently seeking employment with higher pay and better things to offer. Elijah started the tenth grade on Aug. 22nd and all is going well. All of the teachers say he seems to have matured over the summer.

Work is keeping me very busy. I am doing a lot of what I did before, but now I have the responsibility of scheduling the ARD (IEP) meetings, prepping the for the meetings, doing the assessments and writing reports. There is SO much more I do, but I can't even remember it all to list it all. The people I work with are great and I feel fortunate to be where I am.

My honey and I have now been married for three months. Life continues to go well for us. She is working hard and still doing most of the cooking. I am looking forward to many more months with her!

The holidays are just around the corner and I am looking forward to all of them! I'll try to be better and post more often!

Transition

I  went up to the high school today here in town to meet with Elijah, two of his teachers and a DARS (Department of Rehabilitative Services) representative. I had asked for the DARS rep to come to Elijah's ARD but she had something come up last minute and could not attend. One of the teachers we met with is the transition teacher at the high school and the other teacher is his case manager. Elijah will be graduating in just over three years and his unique needs require us to start planning now.

Overall, it was a good meeting. Elijah was not too interested in participating. He had been pulled out of his computer class and he really wanted to get back. He did state that he wants to possibly work on disassembling computers for their parts or maybe working with animals. After he left, we all sat around and discussed what Elijah is capable of. His teachers and I agree that he is smart enough to go to college, but his writing skills are not where they need to be for college. At this point (now remember we still have three more years) we aren't sure about a technical school either. We did agree that when he is doing something he likes that he does a good job. He also needs a schedule and likes to stick to it. He doesn't handle change well.

The nice thing is the DARS representative works exclusively with deaf and hard of hearing students. She can work with the school for Elijah to find a job his senior year and provide a job coach to assist him at work. When he becomes frustrated or flustered he may melt down or cry. The plan is for him to take a transition type of class his junior year. He would learn about resumes, job interviews, and do some volunteer work through the class (working in the school or working at the local animal shelter) and then his senior year he would have a job. He would be able to leave school early and go to the job. The school would even provide transportation to work and then I would pick him up.

I wanted he representative from DARS to meet him now so she would have an idea of what he might need. She can then be on the look out for possible jobs for him after graduation. She will attend his ARD (IEP meeting) next January and help in making his plan for his junior year. I am hoping that Elijah will mature in the next three years and that his social/personal skills improve. I am glad we met today and I feel like we are at least heading in the right direction. The DARS representative stated that he  had employable skills. Now we just have to continue down this road and see where it takes us!

Freedom Obsolescence Process

The Freedom Processor by Cochlear Corp. is in the obsolescence process. I received an email from them explaining the process.

Jan 30, 2016 Dear Cochlear Family Member, Our promise of “Hear now. And always” means we strive to bring you improved sound processor technologies and services designed to help you hear moments that matter most to you.  Did you know the Cochlear™ Nucleus® Freedom® Sound Processor has been in the market for nearly eleven years?  This means that the sound processor is reaching its end of life; hence, we begin the obsolescence process. Our records indicate that you may currently use a Freedom Sound Processor. Please make note of the following milestones:  End of Sale – Effective immediately, the sound processor and associated service plans (extended warranties) are no longer available for purchase.  Aftermarket components and accessories such as coil/cables will remain available for purchase contingent upon supply levels until December 31, 2016. Warranties for new products purchased will end on December 31, 2016. Trade-In – Through June 30, 2016, Cochlear will give a $2,000 trade-in allowance for the Freedom Sound Processor when upgrading to the Nucleus 6 Sound Processor and using the self-pay option. Repair Services – Cochlear will continue to repair the sound processor through December 31, 2016. All repair warranties will end on December 31, 2016. End of Life – The sound processor is no longer supported after December 31, 2016. This means that if your Freedom Sound Processor stops working, Cochlear cannot repair it. Or if you lose a part or accessory, Cochlear cannot replace it.   Elijah currently has two Nucleus 6 Processors that are about 18 months old. He also has four Freedom processors that are not being used. I am going to call SunMed tomorrow and see if he can get two new Nucleus 6 processors since the Freedom processors are going obsolete. I figure it is worth a shot. He upgraded to the Freedom processors back in 2006 and then his body worn processors went obsolete about 2 years later and we were able to trade those in for two new Freedom processors. We shall see what happens.

Life is Funny

Body Worn Processor

I met a friend of mine at a Mexican restaurant to celebrate our graduation from college and earning our Master's Degrees in Special Education. Elijah went along with me because I didn't want to leave him at home alone. My friend and I talked and we all ate a great meal. Elijah was busy playing games on his iPhone and really didn't pay us much attention!

My friend and I were talking about the certification test she still needs to take and our future plans in education. One of the managers of the restaurant came over and asked us how our meal was. My friend spoke to him about another manager that works there. She said he husband went to college with the other manager and they spoke for a few minutes. This manager then said, "The reason I came over is my son is deaf and he just got his cochlear implants." I asked him how old his son was and his son is 12 months old. I told him a bit about Elijah and how he was turned on with his first implant at 18 months of age and how he got his second one at the age of 4 1/2 years. He asked me how Elijah was doing and I proceeded to ask Elijah some questions. Elijah answered them all without even looking up from his iPhone. The manager then showed my friend and me a video of his son being activated. It was exciting to see how the boy reacted to hearing for the first time. The gentleman stayed and talked to us for several more minutes and I encouraged him to make sure he took his son to auditory verbal therapy and to TALK all the time to him. His son has the Nucleus 6 processor like Elijah wears now. I told him about Elijah's first processor which was a body worn processor. He was surprised to hear they used to be so big!

Nucleus 6 Processor

I also told him that I had continued to sign with Elijah when he was first turned on, and that sign slowly faded as Elijah learned to talk!

It was a very interesting conversation. The man was very encouraged and thanked me for my time I have not had this happen in a very long time. When Elijah was younger I was approached by parents of deaf children and adults with hearing loss all the time it seemed. I am not sure if it is becoming more common to see CI processors on people or if I just don't have Elijah with me as much as I did when he was younger. It was nice to hear this man's story and see how excited he was about his son's journey with hearing. I am happy that Elijah and I could be a part of that.

Thirty Million Words

Thirty Million Words is a book I just bought about a month ago. I read a Facebook post about it and it looked interesting. It is written by cochlear implant surgeon. It is an amazing book! I have only ready the first few chapters and can't wait to read more. It is not about cochlear implants, but more about how very young children learn language. It does discuss cochlear implants and I am telling many parents about this book. These are parents of not just deaf children, but also hearing children.

I look back at all of the hard work that went in to making sure that Elijah would speak and have language. His articulation is still iffy on a few sounds, but overall he is an oral communicator with a huge vocabulary. Just yesterday, while helping his brother take out the trash he used the word PHOBIA. He freaked out when he saw a dead bug in the garage. His brother told him to get over it and just bring out the trash bag. I then hear Elijah yell, "I have a PHOBIA!!!" I later asked him what a phobia was and he said it was when a person is scared of something. He got most of the definition correct. He then told me he has a phobia of bugs. He then told me that arachnophobia is when you are scared of spiders. WOW! You would think I would stop being amazed by him, but he still amazes me on a daily basis. All of the hard work that we put in at the beginning of this journey has paid off. It has not been an easy journey, and it still isn't over yet, but we are definitely on the right path.

Thirty Million Words is being sold on Amazon and it is less than $20. Parents should be giving their children the gift of language....hearing or deaf, please talk to your kids. I learned to narrate my life when Elijah was in auditory-verbal therapy and I still do it to this day. It doesn't cost anything to talk to your kids!

Memories

Elijah

Elijah and I attended a Cochlear event today in the Dallas area. He wears the Cochlear brand cochlear implant and they sometimes have events in our area. We have not been to an even in several years as it always seemed to fall on a day when we had other plans. We were both very excited to go and it was fun.

We walked in and the first table we went to had all of the Nucleus 6 items, so we walked to it first. I heard the Cochlear employee talking and I thought, "I know that voice." We stood at the table and the woman looked over at me and said, "I know you." I said, "I know you too, Jennifer. Do you remember me and Elijah?" Her jaw dropped as she looked at us and said, "THIS IS ELIJAH". I grinned and said "YES!". She then said, "He is so tall. The last time I saw him he was such a little guy." Jennifer was the audiologist who turned Elijah's first cochlear implant on. She was also there when he got his second implant. She had not seen us in nine years! Seeing her brought back so many memories of his activation and all of the things we did to make sure that Elijah would hear!

We spoke for about 10 minutes and then more people came up and she needed to speak to them. Elijah and I visited several more tables and we got to see the wireless accessories that he can use with this cochlear implant processor. I got to ask lots of questions about which accessory might work best for him. He got his face painted and he also got some balloon animals! They served us lunch and we ate with some very nice people who also had cochlear implants. Of course, everyone thought Elijah was too cute as he ate his chocolate chip cookies and then asked for more!

I got a picture of Elijah with Jennifer later and she and I spoke again for a bit. She showed me how the scan technology works on his implant processor and how to use the remote control with it. It was pretty interesting to hear about the different settings that his processor can use to SCAN the room and change his settings for him to have optimal hearing. He got to meet other adults with implants. There were a few kids there, but most of them were younger than him.

Overall, it made for a very fun day! I got to pick up some "freebies"--Cochlear bag, microphone protectors for his processors, some magnets and some pamphlets! I hope we can go to another one if they have it near us!

Elijah and Jennifer

 

Back To School

I returned to work on August 17th for the inservice and prep for the new school year. Elijah started high school this past Monday on August 24th and I started my last semester of grad school. Elijah had a very good first week of school. There were no major issues, except for him getting on the wrong bus the first morning, but he managed to get to the right school. I managed not to panic when Jacob told me he got on the wrong bus....I am still not sure what happened, but lets just say it ended well and that is all that matter. The bus route did change after the second day, because he was being picked up late and dropped at home around 5:20. Now he is picked up at 8:05 and dropped off at 4:30! This is much better. He is in ROTC and seems to like it. He is also taking a digital media class and that is going well!

This is my last semester of grad school. I am taking two class, which both involved intelligence and achievement testing. I have to get 160 hours of internship hours through my school. I am going to be practice the testing on my honey and Jacob on the weekend. I have a MAJOR project that is to be completed in place of a Master's thesis or Master's exam. I am still trying to figure it all out. I have a LOT of videos to take....giving assessments, mock consultations with a parent (my sister in law has agreed to help me), interventions (with my niece, but this one is not videos), mock ARD meetings and a few others. Lets just say I'll be BUSY...between family, work and grad school!

Jacob was home this past week for a few days. His semester starts on Monday at TSTC. He will graduate in May of 2016. He is no taking classes that are all focused on his major, computer maintenance.

I'll try to post and keep y'all updated, but it may be DECEMBER before you see me again, or at least get more than just a few sentences in a post!

Teaching Elijah to Tie His Shoes

Elijah is 15 years old and up until yesterday did not know how to tie his shoes. How could this happen you wonder? When Jacob started kindergarten, we were told part of the curriculum was that he would need to learn to tie his shoes. We practiced at home and he practiced at school. He learned to tie his shoes and that was that.

When Elijah was born, there were other things to worry about and the least of my worries was him learning to tie his shoes. He spent four weeks in the NICU and then four weeks in the special care nursery. He came home on oxygen and stayed on oxygen for the next seven months. I spent the winter keeping him healthy and alive. From that point on the focus was on his lungs and his deafness. I was constantly taking care of him, Jacob, my husband, trying to work and trying to find answers on how to help Elijah.

Elijah started school at three in a deaf education preschool classroom in a district that was not in the city we lived in. He started in a signing classroom and then moved to an oral classroom. He had been implanted at 18 months and then in the middle of his second year of pre-k he got his second implant. My focus was still on his lungs as he could get sick quite quickly and on him learning to listen and speak.

Elijah started kindergarten in another district to receive services from a deaf education teacher in a deaf education classroom. Learning to tie his shoes was not on the curriculum and I didn't have time to teach him. This may sound like I was lazy, but that is far from the case. I had been taking him to auditory verbal therapy from the time he was 18 months old through 1st grade once week. His dad took him for another visit each week.  We needed time for therapy at home, homework, my prep for teaching and to hopefully have some fun in there somewhere. When Elijah was in 1st grade he started with occupational therapy for some fine motor issues. Learning to tie his shoes was not a priority. When we couldn't find Velcro shoes I bought LockLaces to uses in his shoes. He also gets frustrated really easily so it was just easier to use the LockLaces.

What has changed and why does Elijah need to learn to tie his shoes? Elijah wants to be in the ROTC this coming school year when he enters high school. Once he is fitted for his uniform he will be required to wear it once a week, and this means dress shoes. Thankfully, all of this is provided by the school at no cost, but he will need to know how to ties his shoes. I will leave in the morning before he is quite dressed and ready and my honey doesn't want to be tying the shoes of a 15 year old boy each morning who isn't always the most cooperative on a good day.

Elijah and I spent about 30 minutes yesterday working on him learning to tie his shoes, and me having to really refine the steps as I tie my shoes without even thinking. He stuck with it and by the end of the 30 minutes could tie a shoe with some prompts from me. We practiced again before he went to bed, again this morning and once again this afternoon. He can now tie a shoe but it still requires a great deal of concentration on his part. We will practice every day for the next three weeks and even after school starts. I am proud of him. It didn't take as long as I thought for him to be able to complete the steps and tie a shoe. Now he just needs to get it more automatic and refine his methods.

Oh and he is a lefty, so I had to tie a shoe using my left hand as my dominate hand....well that gave me some perspective, because I really had to THINK about how to tie the shoe when I was using my left hand.

SUMMER!

We started our summer on June 6th this year! We haven't done too much so far. I am keeping my niece two days a week and had hoped to do some fun things, but the weather is not cooperating. We were going to go to a local outdoor museum that has nature trails, but it rained the day we were to go. We have had a LOT of rain recently, so when I called I was told that the trails were REALLY MUDDY. We went to the movies instead and then out to Steak 'N Shake for lunch. I was going to try the museum again tomorrow, but we woke up to RAIN again. We haven't even been swimming yet!

Overall though, the summer is going well. I am taking fewer mystery shops so I have time to do things. We renewed our membership at the local recreation center so we try to go daily and walk. I have taken my niece and Elijah to the teen room at the library and they really enjoy that. My niece is now old enough to go to the teen room and she thinks it is SO COOL.

Elijah and I are going out of town for a few days and my honey will be here at home. We are going to go and visit my grandmother in Alabama and my mom is going too. Jacob is in Waco all summer attending school, but is home this weekend! He brought two weeks worth of laundry home! My grad school class starts on July 7th, but it is only ONE class so I think I can handle it. I will stop all mystery shopping by that date. Elijah has three doctor's appointments coming up in July. The newest doctor he has added to his list is the ophthalmologist. He didn't do very well with his eye exam at his check up a few weeks ago. He is also going to the pulmonologist and the audiologist. 

I also have two babies through ECI that I will be seeing all summer. One baby is only twice a month so that is no biggie, but the other one is weekly! I enjoy the babies though. We don't have any other big plans for the summer. I just want to try and relax and bit and sleep in!

Counting the Days

I am counting the days until Summer break. I have 5 1/2 more days with students and then 1 1/2 work days. It will be a busy summer. I am planning on doing some mystery shopping in June and my mom and I are taking Elijah to Alabama to visit the family. My grandmother turned 89 this month and I really want to see her. It has been two years since I have been back home. Jacob is down in Waco for his summer semester at TSTC. It is a full 15 week semester, not summer school which moves at a much faster rate and is only about four weeks. He has already texted me to tell me he needs some help with math when he comes home this weekend.

I got some good news this week! I received a $7,000 scholarship for graduate school. It will cover my summer class that I am taking that starts July 7th and my Fall semester classes. I am going to call Texas Tech and cancel my school loan! This will cover tuition, books, and any other supplies I need. I plan on quitting mystery shopping come July 1st and focus on school and the family. It will be hard to give it up, because I love the thrill of getting good shops and extra pay. Next Fall is my last semester in grad school and I will graduate in December. I will be completing my internship for my certification as an educational diagnostician, so it will be a tough semester, but I know I can focus on school now and still be able to focus on the boys, my honey and the rest of my family! It is really wonderful that this happened, and I feel blessed!

We really aren't doing much except for the trip to Alabama. I have one two day workshop in June and Jacob's girlfriend is going to watch Elijah for me. It is close enough that I will drive back and forth each day. I plan on taking a few days here and there to go to the movies, visit some museums and plan some other activities with Elijah. We are also planning on joining the rec center here in town. It is a good price and I like to go walking there. The library is right next door, so Elijah and I will go and walk and then go to the library. Once my class starts, it is a good place to work and let him hang out in the teen room. He also likes to check out books and read. I want to have him read to me this summer.  Hopefully, my honey will be able to join us on a few of these days when we go to a museum or go shopping!

Elijah's Tics are UP!

Elijah's tics seem to have increased in the last few days. Thankfully, he doesn't have many oral and/or motor tics, but when they appear, boy do they appear. I have heard a lot of "HMMMM" and "HMMM HMMMMMMM". It is hard to explain, but it can be constant and after a while the tic can grate on your nerves. Another vocal tic he is doing is a loud SIGH or GRUNT type of sound. Again, it is hard to explain. The other tic I noticed today was him licking his hands and then whipping his face with his hands. This is one of his older tics that I have not seen in a LONG time.  One time, he was riding on the bottom of a grocery cart and he actually licked his hands and ran them on the floor, then went to LICK them. Let's just say, I stopped him in time. The licking can be a CONSTANT TIC for him when it starts. He has also been a bit more argumentative this weekend, which usually happens when his tics increase. I am sure it is because the tics bother him more than he lets on.

I just never know when the tics will start or how long they will last. They just happen and then they are just gone or at least occur less often! If he weren't on his medication then I am sure the tics would happen more often and be more severe!

It Happened Again!

We got a new front door today, so workmen arrived early this morning to take out the old door and install the new door. It was a good three hour job with them even installing a new door frame. There was a lot of noise and a lot of work going on. Elijah and I were just hanging out in the house and watching TV. The cats were locked up in Jacob's room and my honey was off at work.

About an hour before they finished, one of the workmen says to me, "there is someone here to see you". I was surprised to hear this, because I wasn't expecting anyone. I then walked to the door and said, "there is someone for me?" He then pointed to two women and a teenage girl walking up to my door. Of course, there is a lot happening in this area so they didn't get too close. All three of them were dressed up like they were going to church and one of them voice and signs "hello, I see you have some construction. We just wanted to stop by to see you with an invitation." I immediately knew they had see the DEAF CHILD SIGN at the end of the street and asked some neighbors where the deaf kid lives. She then signed and voiced, "your son is deaf, right?" I said, "yes, but he doesn't use sign language. He is oral.". She then said, "Oh, ok." I just stood there and didn't say anything else. She then said "thank you. I guess we won't bother you" and they left.

The three of them left and then I looked at the workman and asked him if they had driven up to my house. He said that they had. I am not sure WHY this bothers me BUT it does. They had  probably found out where I lived sometime before today and then made a special trip to come and see the deaf kid and his family. I relayed the story to my honey when she called later. She then told me that someone had stopped by a few weeks ago when Jacob was home for Spring Break. Elijah and I were not home, because I had taken him to a doctor's appointment. This happened about a year ago too. While I appreciate that they want to reach out to the deaf community, I would really prefer they just NOT show up on my doorstep uninvited. The woman today signed better than the last woman who stopped by though.

Sometimes It Is Just a Beat Down

Living with a teenager who has Tourette Syndrome, OCD and ADHD can be a huge challenge at times. Elijah is SO excited about Christmas, that he becomes obsessed with opening presents, and this is demonstrated with anger, anxiety, and with annoying others. I don't think HE means to annoy others, but he will argue and argue thinking it will get his way.

Christmas Eve morning was just NO fun. He woke up thinking he would get to open presents and I explained that we would open a few in the evening and the rest the next day. The rest of the morning is spent with him in a foul mood and being non-compliant. He just keeps mouthing and going on and on. I finally sent him to his room where he then had his little rage fit, which I ignored. Some time later, I was finally able to talk to him, but my blood pressure and my anxiety were on high alert, because Christmas Eve should not have to be a battle. The rest of the day went fine and Christmas morning went pretty well. We arrived at my dad's house to visit and then when present opening started, Elijah started with his mouthing. He wanted his present NOW and when he got cash he wasn't happy. He wanted a present. Once again, he and I had to go and have a LITTLE CHAT.

I had to send Elijah to his room twice today while his dad was here with his wife and the boy's new little brother (not so new, he is 10 months old). Elijah was telling me NO and just acting up. I wish I knew how his brain worked. I wish I knew a better way to handle him. It is like someone just flips a switch and he is another kid. I try to understand it, but after so many times of arguing with someone I just can't take it and have to just knuckle down and be a really MEAN mom and just get him to his room.

Things will get back to normal once he goes back to school. He needs the routine of school. He constantly wants his iPad, Nintendo DS or the WiiU when he is home and I limit the amount of time he has. It is usually when I am informing him that his time is up that he is his worst. He also thinks just telling me NO will change my mind about what I have asked him to do....yea whatever. I love my son, but some days are just a beat down with him.

The Middle and Quirky Kids

The Middle is one of my favorite TV shows to watch, but I haven't had a chance to catch up on some of the episodes. Today I watched an episode about the youngest son Brick who wants to be like everyone else and have friends. Brick has always been a little different than everyone else. He is very solitary, has vocal tics and repeats the last word he says in a whisper sometimes. He is even in a class to teach social skills. I am not sure what grade he is in, but in this episode he wants to go to a school dance. The parents are hesitant because they know he doesn't really fit in. Brick asks for advice on how to make friends. The parents suggest looking people in the eye, actually talking to people and to maybe put down the books more. As they are talking, he stands up and walks away with as he states an idea he has. Of course, there he is not behaving in a social way.

Brick actually makes it into the dance, and the parents sit outside in the car worrying about how it will go. They aren't even sure if they should leave. The dad even says he is a quirky kid. The parents arrive home only to receive a text to come and pick him up. The parents arrive and Brick texts he is fine, but then he soon comes out and doesn't want to talk about the experience. Brick has also lost a shoe in the process. The show ends with a girl coming over to bring Brick back his shoe. She looks like she has some social issues too, but she invites him to go get ice cream. Brick thanks her, declines and then slams the door. Of course, mom intervenes and tells him that she just asked him out. Brick grabs his jacket and runs to the door to get her. The show ends with the parents sitting outside the ice cream parlor receiving texts from Brick and wondering how he is doing.

As a parent of a quirky kid, I so appreciated this episode. Elijah is the quirky kid. He doesn't always say "HI" back when another student or adult says "HI" to him. He doesn't always fit in and I am not sure if he really has any friends at school. He doesn't care what other people think of him, at least other kids anyway. He is just out there doing his own thing. As a parent I just want to fix this for him, but I can't. All I can do is try to find ways for him to be around other kids and see what happens. We went to the library yesterday and he hung out in the Teen Room while I worked on grad school stuff. He played some Wii games with some other teens. I am going to start taking him every week so he has a chance to work on his social skills. It just isn't easy knowing he is the quirky kid and knowing all I can do is provide him with opportunities and practice with him as much as I can so he knows what to do when around others.

Misconceptions

Earlier today, my doorbell rang and so I went to answer the door. When I opened the door, there were two women standing there both looking at me. I stood there and waited, and they didn't say anything. I then asked who they were looking for. The taller woman then gestured to the shorter one who began signing. The taller woman started interpreting for her. I then told them both that I know sign language. They were Jehova's Witnesses, who wanted to tell me about some videos online for children with sign language. We spoke, and then I asked them how they knew I had a deaf son. Now, realize, they had never asked me if I had a son who was deaf, and I doubt they just went door to door informing people of these videos. They then said that a neighbor had mentioned to another Jehova's Witness that there was a deaf boy who lived on the street. I am sure it came up when someone saw the DEAF CHILD AREA sign on our street.


Many people have the misconception that all deaf children sign. Granted, Elijah does understand some signs, but it is not his main mode of communication. The same is true for children with cochlear implants, not all of these children can communicate orally. Many children with cochlear implants still use sign language. There is no right or wrong way, there is just the way that is right for that particular child or family.

Using Sign Language to Communicate

Elijah hears very well with his cochlear implants, but there are times when I use sign language to communicate with him. Of course, when he is not wearing his processors I use signs to communicate. This is usually when he is dressing or bathing! There are other times though, that I do rely on sign to communicate with him.

Yesterday, we went to the recreation center for archery tag. This was in a huge gym, that was split down the middle and there was a lot of NOISE. All of the kids got to practice shooting with the bow and arrows and then the game started. He had to wait with the older kids while the younger kids played first. I was about 20 feet from him walking to try to get my steps in (I wear a Fitbit and am trying to lose weight) and he would whine and say he wanted to play. I was able to sign to him "wait, stop" and threaten to take away his iPad later....all in sign language. Later when he was up playing with his team, I was able to sign to him "good job, stop" and a few other things. Even with his processors, in a LOUD environment it can be hard for him to hear.

Even today I used signs with him again. We were at a loud restaurant for my brother and soon to be wife's after rehearsal party. He was at the kid's table with his cousins and I was able to sign ask him if he wanted his iPad later, and he voiced yes, and I signed for him to stop whining. My brother looked at me and said, "I wish my kids knew sign so I could speak to them quietly like that." Elijah really does understand sign language, even though he voices back and doesn't sign to me. I am glad that I have this way to communicate with him either due to background noise or distance!

Nucleus 6 Turn On

Today was the day that Elijah's Nucleus 6 processors were turned on. It was a very good visit and Elijah cooperated very well. He sat and listened to the tones and identified the quietest tones and then it was quite obvious when the tones  were loud. He actually winced a few times, but thankfully did not get mad. Once it was all done, he sat and listened with both of his new processors. He liked it and said that they "felt good", meaning on his ears. The audiologist then showed us how to turn the telecoil on, and explained how to change programs. For now, he has only two programs, one new one and one from his Freedom processors. The audiologist also gave me a tutorial on the remote system. It is pretty cool, and will change settings on both processors at the same time!


Elijah quickly turned on the telecoil, plugged his music links into his iPad and started playing. The audiologist and I visited for a bit and reviewed a few things on the new processors. She wants to see him again before school starts and do a hearing test, so I set up that appointment for August. We left and took some pictures. For some reason, I cannot post pictures on this blog, but I will when whatever glitch gets fixed.


We arrived home and took out his colored covers and put a blue one on one ear and the orange on the other ear. The audiologist labeled his processors on the coil, with an R for right and an L for left. There really is no other way to label them. He will be using rechargeable batteries, so he won't be using SkinIts right now. I am thinking of ordering him a few more colors. I am hoping the Aqua+ Pack comes in soon, so he can wear it and swim with his processor!

Elijah's N6's Have Been Ordered

I got the email today that Elijah's N6's have been approved at the in-network rate! He and I sat and looked at the order form and he decided he wanted the color Maize(beige). He also picked out two different processor covers(one for each ear). We are both very excited that he will be upgrading to the N6 from his Freedoms. I was told it will take 5-7 days for them to ship to us, and hopefully someone will be home to sign for them. If not, I will make the 20 minute drive to the FedEx office the next day and pick them up! I can also send his Freedoms back to be cleaned once his N6's are programmed. I made an appointment for him on June 25th to get them programmed. Even with insurance coverage these processors are still expensive, but I am happy that Elijah will get this upgrade!

 

Here you can see the size difference between the Freedom, which Elijah is wearing now, and the N6 he will be wearing soon!

 

Mischief

The definition for mischief is--playful misbehavior or troublemaking, esp. in children. This definitely describes Elijah these days. He is not misbehaving to be mean or cause trouble, he is just being a kid and accidentally breaking things or driving me crazy. I think it is a mix of his Tourette Syndrome, OCD, ADHD and being  TEENAGER. I hope I can survive these teen years.

This mischief usually occurs when he is bored and doesn't have much to do. I may be busy with house work, grad school work, or just WORK in general. He has too much time on his hands and I am too busy to notice this mischief. After two days home with him on the weekend, I am ready to go back to work.

One day he will finish growing up and move out (I hope at least) and I know I will look back on these days and laugh. I will not want him to move out and have him be my little boy forever. I guess I should enjoy these times now and be glad he isn't out causing mischief, and is just causing it here at home.

Parenthood--The Offer 3/20/14

Parenthood once again tugged at my heart strings last night. In this episode, Max, who has Aspergers goes on an overnight field trip with his class. His mother, Kristina, was going to chaperon, but he told her that he didn't want her to. The parents talk about it and decide to let him go. They later get a phone call that they need to come and pick up Max. They drive the 2-3 hours to pick him up and he won't tell them what happened. The teacher who waited with Max, also didn't know what happened.

While they are driving home, Max finally opens up by asking his parents why the other kids hate him. He finally tells them that one of the boys peed in his canteen and called him a freak. You can see the parents reactions during this scene and it is heart wrenching. Both parents are visibly upset, and the father is ready to take on this boy who harassed Max. Max tells his parents that he tries to understand his friends and you can hear how much he wants to belong, but just can't. He knows he is different and that he will never understand why they do what they do. He tells his parents that he is a freak. The mother takes off her seat belt and climbs into the back seat to hug him. Of course, Max tells her this is unsafe and that he doesn't want to be hugged, but she keeps hugging him. The father is on the verge of tears. This is how this storyline in this episode ended, and there were no previews about this storyline for next week.

All I can say is bravo for taking on the topic of bullying, Aspergers, and special needs in general. As a parent of a special needs child, I worry that my son will be bullied. He is in 7th grade right now, and so far things are going well. I worry more about him entering high school in another year. Parenthood is one of the few shows to take a realistic look at the life of a family with a child with special needs and so far they are doing a great job.